Today at pre-dialysis weight record I saw that I am about 200 mL heavier than my previous pre-dialysis weight so I thought that I have to adjust what should be set to be dialyzed off from my body plus a bit more which is just 100 mL with a total of 300 mL only.
Come the treatment time I was asked how much that they have to set to be taken off but one of my nurse said no and diminished 300 mL from what I wanted to be taken off. We argued a few times but it was no use, they are in control and I can't do anything about it.
She pointed out that I should only be taken off with 1.8 Liters of water and no more because of my weight not in proper ratio with the recommended maximum amount and that I will have to go multiple times a week in order to comply with that weird standard that could very well expedite my death.
Because obviously you will only take off 1.8 Liters of water while my weight gain is double that, I will never last until the next dialysis session. I don't know what this nurse had eaten, maybe she has a bad period or have a headache or punishing me because of something the other patients had done against them or whatever, it really doesn't make sense.
I feel threatened by what she said considering that they are adding sodium to my system which makes me feel this burning thirst each and everytime during session and thus forces me to sweat it out so that I can lessen the salt in my system so I can get to cut my thirst naturally and they are the ones who are introducing too much salt into my system.
Well at least maybe I can transfer to other dialysis center, it might be feasible for that one in my town or I could go to the other big hospital but I am not sure yet if they have a dialysis treatment facility there but I really do not want to end to that scenario but right now I am forced to limit my water weight gain to only 3.2 kilos and that really will make me more emaciated because i have to limit my food intake in order for me to control my fluid intake. Come the colder months where I will not be perspiring much anymore my situation will definitely become much worse.
I hate the fact that some person(s) are in control of my physical life, they can kill me with a switch of a button.
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Prayers go out to you my friend. Stay strong and speak up if you have to.
Thank you @world-travel-pro, I know that I am against all odds and then another oddity that I have to face now with these ever stricter rules that will mean my life or death, its just getting harder. 🙁
Salt helps with your digestive track and the spread of the nutrients you need around your body. Look it up.
Not saying you shouldn't stop being skeptical. You never know these days. Be not afraid to hold your ground and demand evidence. And council when you need it.
Yeah I am in a very bad situation and these nurses are not competent enough to care for us that is why the turn out (Mortality rate) in our dialysis center is high. I only lasted for a long time because of my control to my body and not letting my nurses to do the judgement, even my doctor is not competent to make our lives easy in this place, the medical standard here is lower compared to western medicine.
Good post sir I will try to my best for a best post crate
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