After Leontiasis had disfigured my face, it affected my ability to speak coherently and drink my beverages and eat my food upright because I can't close my lips which is why I would lay down on my back so that I will not throw food out from my mouth while chewing. Leontiasis is a very rare condition and it is too horrid that I even do not want to google it.
You can't imagine the level of hardships that I went through because even my nurses mocks the way I speak, I just tried to ignore them and keep it to myself for the fear that it will affect my dialysis quality because they control the way I would live my life, so thankfully they still have a level of professionalism in them.
The overgrowth of bone in my face/mouth had given me some fear that I thought at first it will not abate but make me a horrible sub-human being. I was thinking of mal-transforming to the "Elephant man" but thanks to God a million times I was able to afford a correct doctor for my condition to treat me with the correct drug to take.
Don't Google "Elephant man"
Taking Cinacalcet, an anti-hyperparathyroid for more than two years made my facial bone overgrowth resulted the bone inside to recede a bit particularly in the mouth area making me take back the ability to speak coherently again.
I just have to stop taking Cinacalcet because I cannot endure its side-effects anymore like vertigo and appetiteloss which now I cannot regain for some reason anymore. But with a stroke of the sweetest luck ever I am able to treat my bone issues with vitamin k2 Mk-7 which made more improvement compared to taking Cincalcet.
My facial bone is continuing to recede from having a three finger thick wide gap to now about only a finger-wide gap with my mouth when in a relaxed mode. Now I am hoping that God wills it for me to get some more improvements.
I was waiting now for my lips to fully close with a relaxed mouth like a normal person if that will ever happen in the near or mid-future. Then I will be able to whistle again like Axl Rose in the song Patience by Guns 'n Roses.
I can imitate how Axl Rose whistles in this song and I missed that gift a lot because you know not all people can whistle. It was my eldest brother that had taught me how to whistle when I was just little, I mean just before this house was built from 1983, later I was already whistling on my own especially when i am stressed or maybe in the bathroom, it is a good stress reliever.
But after my facial disfigurement it went away and frustrated me a lot if you can imagine. Now the question of if I ever regain back my gift of whistling is up for the time to reveal. But one this is for sure if I that would happen then I am already in a better state of health compared when I once was and I will thank God for that miracle today.
I am optimistic if I can still see an ember hope twenty million light years away, I just needed more time.
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Hello very good afternoon, wow I like your post, and what most caught my attention was to see that you put videos in them and I think it's great will be that please could you tell me how you do it, if you need some code or something, and thank you very much.
You just copy the url of youtube video and paste it when youwant to submit or create a post or comment.
ok, thank you very much for replying :D
Congratulations, your post has been curated by @dsc-r2cornell. You can use the tag #R2cornell. Also, find us on Discord
Felicitaciones, su publicación ha sido votada por @ dsc-r2cornell. Puedes usar el tag #R2cornell. También, nos puedes encontrar en Discord