Hoping for it to continue and not to impede on how far back my facial bone overgrowth would recede {.⋅ ♫ ⋅.} Esperando que continúe y no impida el retroceso de mi sobrecrecimiento óseo facial.

in blurtlatam •  2 years ago 

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I am a freak of nature and that's the reality so I am dreaming of something which in truth cannot be.

Soy un bicho raro de la naturaleza y esa es la realidad, así que estoy soñando con algo que en verdad no puede ser.

I am actually living a "nightmarish" kind of life. because of what happened to my bones. I developed this rare medical condition which is called "Leontiasis Ossea" or a "Lion Face" syndrome which caused by a secondary hyperparathyroidism (not hyperthyroidism). It is because of a constant elevation of Phosphorus levels in my body that happened for the reason of financial constraints. That is why I haven't gotten the best treatment that I need in order to manage my situation of being a dialysis patient. I was so clueless of what was brewing in my body. because of course I do not have the means necessary to understand the scope of my health issue because even my doctor doesn't know how to properly manage my condition as a dialysis patient.

En realidad estoy viviendo una vida de pesadilla por lo que le pasó a mis huesos. Desarrollé esta rara condición médica que se llama "Leontiasis Ossea" o un síndrome de "Cara de León" que causada por un hiperparatiroidismo secundario (no hipertiroidismo). Es debido a una elevación constante de los niveles de fósforo en mi cuerpo que ocurrió por la razón de las limitaciones financieras. Por eso no he recibido el mejor tratamiento que necesito para controlar mi situación de paciente en diálisis. Yo estaba tan despistado de lo que se estaba gestando en mi cuerpo. porque, por supuesto, no tengo los medios necesarios para comprender el alcance de mi problema de salud, porque incluso mi médico no sabe cómo manejar adecuadamente mi condición de paciente de diálisis.

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Our bodies have its balancing work management, if that would be disturbed then it will manifest in one way or the other.

Nuestros cuerpos tienen su gestión del trabajo de equilibrio, si eso se perturbara entonces se manifestaría de una manera u otra.

My life happened to get prolonged because God had moved the late preacher of my church to establish a clandestine dialysis center within the church's big convention center compound in the province next to my province. Sometimes during the church's regular thanksgiving celebration I will be scheduled during that day in the weekends. I was able to enjoy the free dialysis treatments until one day it got discontinued because we no longer have a Nephrologist to handle it. The reason was the dialysis center was not able to get a permit for some reason. However it could be that my late preacher was coerced by some brethren to discontinue it because it is not generating revenue or just catering the same patients who are also members.

Mi vida se prolongó porque Dios hizo que el difunto predicador de mi iglesia estableciera un centro de diálisis clandestino en el gran centro de convenciones de la iglesia en la provincia vecina a la mía. A veces, durante la celebración regular de acción de gracias de la iglesia, me programaban para ese día en los fines de semana. Pude disfrutar de los tratamientos de diálisis gratuitos hasta que un día se suspendieron porque ya no teníamos un nefrólogo que se ocupara de ellos. La razón fue que el centro de diálisis no pudo obtener un permiso por alguna razón. Sin embargo podría ser que mi difunto predicador fue coaccionado por algunos hermanos para descontinuarlo porque no está generando ingresos o simplemente atendiendo a los mismos pacientes que también son miembros.

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The direct help of my late church minister was a heaven-sent support for me until I am able to help myself.

La ayuda directa de mi difunto pastor de la iglesia fue un apoyo celestial para mí hasta que pueda ayudarme a mí misma.

I mean my church can get permit if they want, maybe not inside the convention center but in some other place. But now it is long gone, most of the former patients there had already passed except myself and the other patient who is like me that cannot walk anymore but it seems that she hasn't developed Leontiasis Ossea like I did. I thank God that I was able to make use of the government health insurance which is a great help for me because I am able to go for a regular dialysis without having to worry about large bills to pay because it is a fact that a dialysis treatment is a very expensive procedure for an individual to go through. That is why I am able to witness dialysis patients that would stop going for their treatments because they are no longer able to pay during the years that almost every patient are paying the said treatment out of pocket.

Quiero decir que mi iglesia puede obtener el permiso si lo desea, tal vez no dentro del centro de convenciones, pero en algún otro lugar. Pero ahora hace mucho que desapareció, la mayoría de los antiguos pacientes que había allí ya habían fallecido, excepto yo y la otra paciente que es como yo, que ya no puede caminar, pero parece que no ha desarrollado Leontiasis Ossea como yo. Doy gracias a Dios por haber podido utilizar el seguro médico del gobierno, que me ha sido de gran ayuda porque puedo someterme a diálisis regularmente sin tener que preocuparme por las facturas, ya que el tratamiento de diálisis es un procedimiento muy caro para una persona. Por eso he visto a pacientes de diálisis que dejaban de someterse al tratamiento porque ya no podían pagarlo durante los años en los que casi todos los pacientes pagaban el tratamiento de su bolsillo.

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Not being able to get a permit as a reason had caused the charity dialysis treatment to cease in operation. I was already out from there when it happened.

El hecho de no poder obtener un permiso como motivo había provocado el cese de actividad del tratamiento de diálisis de beneficencia. Yo ya estaba fuera de allí cuando ocurrió.

I was only able to survive by being able to go for a free dialysis treatment for about six years after paying out of pocket for two years before those six years of being a dialysis patient. Then after that I was able to finally use my health insurance after paying the premium payments that would qualify me for getting covered for my dialysis in the current hospital that I am going for the said dialysis treatments. But from all those years I was not able to do and follow a strict diet because of my lack of awareness on how I can manage my medical condition. I even stopped the use of Calcium carbonate because the trainee doctor told me that I am having a chest calcification. My calcium use blamed for that so I just stopped using Calcium carbonate, I do not even know why I am using it and how.

Sólo pude sobrevivir con un tratamiento de diálisis gratuito durante unos seis años, después de pagar de mi bolsillo dos años antes de esos seis años de diálisis. Después de eso, pude finalmente utilizar mi seguro médico tras pagar las primas que me permitirían recibir cobertura para mi diálisis en el hospital al que acudo actualmente para recibir dichos tratamientos de diálisis. Pero durante todos estos años no he sido capaz de seguir una dieta estricta debido a mi falta de conocimiento sobre cómo puedo controlar mi enfermedad. Incluso dejé de tomar carbonato cálcico porque el médico en prácticas me dijo que tenía una calcificación en el pecho. Así que dejé de tomar carbonato cálcico, ni siquiera sé por qué lo tomo ni cómo.

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Universal health care is one of the biggest blessing for me. I regret that my family were clueless from getting insurance in the first place.

La sanidad universal es una de las mayores bendiciones para mí. Lamento que mi familia no tuviera ni idea de contratar un seguro.

One of my attending doctors even told me to take it in-between meals which I later learned was wrong because calcium was supposed to function as phosphate binder in order to lower the Phosphorus levels in the body by binding calcium with Phosphorus in the foods that I would eat or drink. My own Nephrologist also told me to use calcium but not telling me why. She didn't even mentioned any Phosphate binder like I was taking before like the "Sevelamer carbonate" and other types of phosphate binder. That is why the elevated Phosphorus in my body had been left unchecked for that matter. However I can't blame anyone because of the reason that I can't afford to get those required "bloodwork" to be done in order to monitor my health so that it can get fixed or at least be controlled.

Uno de los médicos que me atendió incluso me dijo que lo tomara entre comidas, lo que más tarde supe que era un error porque se suponía que el calcio funcionaba como aglutinante del fosfato para reducir los niveles de fósforo en el cuerpo uniendo el calcio con el fósforo de los alimentos que comía o bebía. Mi propio nefrólogo también me dijo que tomara calcio, pero sin decirme por qué. Ni siquiera mencionó ningún aglutinante de fosfato como el que tomaba antes, como el "carbonato de Sevelamer" y otros tipos de aglutinantes de fosfato. Es por eso que el fósforo elevado en mi cuerpo no había sido controlado. Sin embargo, no puedo culpar a nadie por la razón de que no puedo permitirme el lujo de conseguir esos "análisis de sangre" necesarios para hacer un seguimiento de mi salud para que pueda arreglarse o al menos controlarse.

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Being so impoverished had forced me to just prioritize dialysis and blood transfusions and leaving out the almost equally important issue of proper bone health management.

Estar tan empobrecida me había obligado a dar prioridad únicamente a la diálisis y las transfusiones de sangre y a dejar de lado la cuestión casi igual de importante de una gestión adecuada de la salud ósea.

I just concentrated in only getting dialysis treatments and getting free blood in which I need to get the required red cross blood cards that I can get from one of my church's coordinating centers and use it to show to the nearby red cross building in order for me to get some free bags of blood. My church sis one of the biggest contributor of blood to the red cross organization here in my country. However I have to undergo some red tape in order for me to get some blood which is also a not sure way for getting blood because of the supply and demand. I also have to call the red cross in the "wee hours" of the morning and hoping to reserve a bag or two of blood before other people can reserve it for their own patients.

Sólo me concentro en recibir tratamientos de diálisis y en conseguir sangre gratis, para lo cual necesito conseguir las tarjetas de sangre de la Cruz Roja que puedo obtener en uno de los centros de coordinación de mi iglesia y usarlas para mostrarlas en el edificio cercano de la Cruz Roja para conseguir algunas bolsas de sangre gratis. Mi iglesia es una de las que más sangre aporta a la Cruz Roja de mi país. Sin embargo, tengo que pasar por algunos trámites burocráticos para conseguir sangre, lo que no es seguro debido a la oferta y la demanda. También tengo que llamar a la Cruz Roja a altas horas de la madrugada con la esperanza de reservar una o dos bolsas de sangre antes de que otras personas puedan reservarlas para sus propios pacientes.

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The work of acquiring bags of blood is a tedious process which I am more than happy and glad that I was able to graduate in doing.

El trabajo de adquirir bolsas de sangre es un proceso tedioso del que estoy más que contento y feliz de haber podido graduarme en hacerlo.

But by some miracle or a divine gift from God, my hemoglobin doesn't fall anymore which had left me in not requiring blood transfusions and expensive EPO injections anymore which was indeed a great thing to happen because I do not have to worry about anemia and the symptoms that are associated to it as well as the trouble of how I can get some blood and then the expense of using an EPO injection regularly so that I can avoid suffering from anemia. Solving the anemia problem due to unknown reason was the best that could ever happen to me and yet it happened and I am so thankful to God about it because it is indeed a miracle for the reason that Kidneys are the major organ to produce Erythropoietin hormones so that the bone marrow can produce blood. But my body is seems to be producing EPO hormones on its own ways. I do not know why it happened considering that they should not be because my kidneys are not functioning anymore and still making me wonder until this day.

Pero por algún milagro o un regalo divino de Dios, mi hemoglobina no cae más que me había dejado en no requerir transfusiones de sangre y costosas inyecciones de EPO más que era de hecho una gran cosa a suceder porque no tengo que preocuparme por la anemia y los síntomas que se asocian a ella, así como el problema de cómo puedo conseguir un poco de sangre y luego el gasto de usar una inyección de EPO con regularidad para que pueda evitar el sufrimiento de la anemia. Solucionar el problema de la anemia debido a la razón desconocida era el mejor que podría sucederme siempre y con todo sucedió y soy tan agradecido a dios sobre él porque es de hecho un milagro por la razón que los riñones son el órgano importante para producir las hormonas de Erythropoietin de modo que la médula ósea pueda producir sangre. Pero mi cuerpo parece estar produciendo hormonas EPO por sus propios medios. No sé por qué sucedió teniendo en cuenta que no deberían ser porque mis riñones no están funcionando más y todavía me hace preguntarme hasta el día de hoy.

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God's own way of helping me by wiping away the problem of anemia is something very unusual which is why I am regarding it as a miraculous intervention.

La forma en que Dios me ha ayudado eliminando el problema de la anemia es algo muy inusual, por lo que lo considero una intervención milagrosa.

However I was still clueless in what was happening to my body even though my bones are already changing. I thought that it was just normal thing for my case to have changes about my appearance, to get ugly because of being a dialysis patient. I never concentrated about my own facial appearance which is why I seldom use the mirror. I am bald all the time which was the reason that I never checked my face in the mirror. Until I saw myself one day from the mirror that my body indeed had gotten malformed especially my face. It went so fast that I was surprised about it. I am always lying on my back because of the pain and weakness until the pain and malformation went parabolic in speed and progression.

Sin embargo, seguía sin saber lo que le pasaba a mi cuerpo, a pesar de que mis huesos ya estaban cambiando. Pensaba que en mi caso era normal que mi aspecto cambiara, que me pusiera fea por ser paciente de diálisis. Nunca me he preocupado por mi aspecto facial, por eso casi nunca me miro al espejo. Soy calvo todo el tiempo y por eso nunca me miraba al espejo. Hasta que un día me vi en el espejo y me di cuenta de que mi cuerpo se había deformado, sobre todo la cara. Fue tan rápido que me sorprendió. Siempre estaba tumbada boca arriba a causa del dolor y la debilidad hasta que el dolor y la malformación se volvieron parabólicos en velocidad y progresión.

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I thought that getting ugly was a normal occurrence until I changed to looking like a pitiful freak.

Pensé que ponerme feo era algo normal hasta que pasé a parecer un bicho raro lamentable.

It was a long story until I was able to discover the therapeutic effects of vitamin K2 MK-7. To sum-up the effects of the aforementioned vitamin, it effectively reverses the effect of secondary Hyperparathyroidism by letting the bone to absorb Calcium faster more than it sheds-off. That is why I am reporting a lot of alleviation of lingering pain in my joints and bones. The Cinacalcet medicine seems to be mellowing down the effect of secondary hyperparathyroidism but not rehabilitating the bones. It was the reason that I am not getting a considerable improvement using Cinacalcet because it is only slowing down the deterioration of my bones.

Fue una larga historia hasta que pude descubrir los efectos terapéuticos de la vitamina K2 MK-7. Para resumir los efectos de la vitamina antes mencionada, invierte eficazmente el efecto del hiperparatiroidismo secundario al permitir que el hueso absorba el calcio más rápido de lo que se desprende. Es por eso que estoy reportando mucho alivio del dolor persistente en mis articulaciones y huesos. El medicamento Cinacalcet parece estar suavizando el efecto del hiperparatiroidismo secundario pero no rehabilitando los huesos. Esta es la razón por la que no estoy obteniendo una mejora considerable utilizando Cinacalcet porque sólo está ralentizando el deterioro de mis huesos.

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I do not always trust food supplements however the effect of vitamin K2 MK-7 for my bone health cannot be equaled by anything, another miracle that I was able to discover this wonderful vitamin that alleviated the quality of my life.

No siempre confío en los complementos alimenticios sin embargo el efecto de la vitamina K2 MK-7 para mi salud ósea no puede ser igualado por nada, otro milagro que pude descubrir esta maravillosa vitamina que alivió la calidad de mi vida.

Now my facial bone overgrowth is still receding because I am feeling it with my mouth. The bones mass under my tongue seems to be to have gone down although not completely. My appearance is not that too shocking to look at, well at least for me. So for now I am still under observation. I am hoping that this recession of my facial bone overgrowth will continue and it would be like heaven if it did so that I can get the option to have some teeth attached again so that I can eat chew like normal again so that I can eat better although in the back of my mind it is quite impossible. However, nothing is impossible to God if he wills it. My hope of some great changes that could happen to my body excites me a lot and another reason for me to look forward to see the light of days in my life.

Ahora mi sobrecrecimiento óseo facial sigue retrocediendo porque lo noto con la boca. La masa ósea debajo de la lengua parece haber disminuido, aunque no del todo. Mi aspecto no es demasiado chocante, al menos para mí. Por ahora sigo en observación. Espero que esta recesión de mi sobrecrecimiento óseo facial continúe y sería como el cielo si lo hiciera para que pueda tener la opción de tener algunos dientes unidos de nuevo para que pueda comer masticar como normal de nuevo para que pueda comer mejor aunque en el fondo de mi mente es bastante imposible. Sin embargo, nada es imposible para Dios si él quiere. La esperanza de algunos grandes cambios que podrían suceder a mi cuerpo me excita mucho y otra razón para que yo mire adelante para ver la luz de días en mi vida.

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It has been a life long effort in trying to mend this wretched body of mine but for as long as I am still breathing I will not let go but rather letting God to take control in both of my physical and spiritual well-being.

Ha sido un esfuerzo de toda la vida para tratar de reparar este miserable cuerpo mío, pero mientras siga respirando no lo dejaré ir, sino que dejaré que Dios tome el control de mi bienestar físico y espiritual.


Translated in Filipino [Taglish]


Ako ay nabubuhay sa isang "bangungot" na uri ng buhay. dahil sa nangyari sa buto ko. Nagawa ko itong pambihirang kondisyong medikal na tinatawag na "Leontiasis Ossea" o isang "Lion Face" syndrome na sanhi ng pangalawang hyperparathyroidism (hindi hyperthyroidism). Ito ay dahil sa patuloy na pagtaas ng mga antas ng Phosphorus sa aking katawan na nangyari dahil sa mga hadlang sa pananalapi. Iyon ang dahilan kung bakit hindi ko nakuha ang pinakamahusay na paggamot na kailangan ko upang pamahalaan ang aking sitwasyon bilang isang pasyente ng dialysis. I was so clueless kung ano ang namumuo sa katawan ko. dahil siyempre wala akong mga paraan na kailangan para maunawaan ang saklaw ng aking isyu sa kalusugan dahil kahit ang aking doktor ay hindi alam kung paano maayos na pamahalaan ang aking kondisyon bilang isang pasyente ng dialysis.

Nagkataon na napahaba ang buhay ko dahil ginalaw ng Diyos ang yumaong mangangaral ng aking simbahan na magtatag ng isang clandestine dialysis center sa loob ng malaking compound ng convention center ng simbahan sa probinsya sa tabi ng aking probinsya. Minsan sa regular na pagdiriwang ng pasasalamat ng simbahan ay nakaiskedyul ako sa araw na iyon sa katapusan ng linggo. I was able to enjoy the free dialysis treatments until one day it got discontinued dahil wala na kaming Nephrologist na humawak nito. Ang dahilan ay hindi nakakuha ng permit ang dialysis center sa ilang kadahilanan. Gayunpaman, maaaring ang aking yumaong mangangaral ay pinilit ng ilang mga kapatid na itigil ito dahil hindi ito kumikita o nagtutustos lamang ng parehong mga pasyente na miyembro din.

I mean my church can get permit if they want, maybe not inside the convention center but in some other place. Pero ngayon ay matagal na, karamihan sa mga dating pasyente doon ay dumaan na maliban sa sarili ko at sa ibang pasyente na kagaya ko na hindi na makalakad pero parang hindi pa siya nadevelop ng Leontiasis Ossea tulad ng ginawa ko. Nagpapasalamat ako sa Diyos na nagamit ko ang segurong pangkalusugan ng gobyerno na malaking tulong para sa akin dahil nagagawa kong magsagawa ng regular na dialysis nang hindi nag-aalala tungkol sa malalaking singil na babayaran dahil ito ay isang katotohanan na ang paggamot sa dialysis. ay isang napakamahal na pamamaraan na dapat pagdaanan ng isang indibidwal. Kaya naman nasaksihan ko ang mga pasyente ng dialysis na titigil sa pagpapagamot dahil hindi na sila nakakabayad sa mga taon na halos lahat ng pasyente ay nagbabayad ng nasabing paggamot mula sa bulsa.

Nakaraos lang ako sa pamamagitan ng libreng pagpapagamot sa dialysis sa loob ng humigit-kumulang anim na taon pagkatapos magbayad ng mula sa bulsa sa loob ng dalawang taon bago ang anim na taon ng pagiging isang pasyente ng dialysis. Pagkatapos noon ay nagamit ko na sa wakas ang aking segurong pangkalusugan pagkatapos bayaran ang mga bayad sa premium na magiging kuwalipikado sa akin na masakop para sa aking dialysis sa kasalukuyang ospital na aking pupuntahan para sa nasabing mga paggamot sa dialysis. Ngunit mula sa lahat ng mga taon na iyon ay hindi ko nagawa at sundin ang isang mahigpit na diyeta dahil sa aking kawalan ng kamalayan kung paano ko mapapamahalaan ang aking kondisyong medikal. Itinigil ko pa ang paggamit ng Calcium carbonate dahil sinabi sa akin ng trainee na doktor na nagpapa-calcification ako ng dibdib. My calcium use blamed for that kaya tumigil na lang ako sa paggamit ng Calcium carbonate, hindi ko nga alam kung bakit ko ito ginagamit at kung paano.

Sinabi pa sa akin ng isa sa mga dumadalo kong doktor na inumin ito sa pagitan ng mga pagkain na kalaunan ay nalaman kong mali dahil ang calcium ay dapat na gumana bilang phosphate binder upang mapababa ang mga antas ng Phosphorus sa katawan sa pamamagitan ng pagbubuklod ng calcium sa Phosphorus sa mga pagkain na kakain o iinom. Sinabi rin sa akin ng sarili kong Nephrologist na gumamit ng calcium ngunit hindi sinasabi sa akin kung bakit. Wala man lang siyang binanggit na Phosphate binder tulad ng kinukuha ko dati tulad ng "Sevelamer carbonate" at iba pang uri ng phosphate binder. Iyon ang dahilan kung bakit ang nakataas na Phosphorus sa aking katawan ay hindi napigilan para sa bagay na iyon. Gayunpaman, hindi ko masisisi ang sinuman dahil sa kadahilanang hindi ko kayang gawin ang mga kinakailangang "bloodwork" upang masubaybayan ang aking kalusugan upang ito ay maayos o makontrol man lang.

Nag-concentrate lang ako sa pagkuha lang ng mga dialysis treatment at pagkuha ng libreng dugo kung saan kailangan kong makuha ang mga kinakailangang red cross blood card na makukuha ko mula sa isa sa mga coordinating center ng aking simbahan at gamitin ito para ipakita sa kalapit na red cross building para sa akin. para makakuha ng ilang libreng bag ng dugo. Ang aking simbahan ay isa sa pinakamalaking nag-aambag ng dugo sa organisasyon ng red cross dito sa aking bansa. Gayunpaman kailangan kong sumailalim sa ilang red tape upang makakuha ako ng dugo na isa ring hindi siguradong paraan para makakuha ng dugo dahil sa supply at demand. Kailangan ko ring tumawag sa red cross sa "wee hours" ng umaga at umaasa na makapagpareserba ng isang bag o dalawang dugo bago ito maipareserba ng ibang mga tao para sa kanilang sariling mga pasyente.

Ngunit sa pamamagitan ng ilang himala o isang banal na regalo mula sa Diyos, ang aking hemoglobin ay hindi na bumagsak na nag-iwan sa akin sa hindi na nangangailangan ng pagsasalin ng dugo at mga mamahaling iniksyon ng EPO na talagang isang magandang bagay na nangyari dahil hindi ko kailangang mag-alala tungkol sa anemia at ang mga sintomas na nauugnay dito pati na rin ang problema kung paano ako makakakuha ng dugo at pagkatapos ay ang gastos ng regular na paggamit ng EPO injection upang maiwasan ko ang pagdurusa sa anemia. Ang paglutas ng problema sa anemia dahil sa hindi malamang dahilan ay ang pinakamahusay na maaaring mangyari sa akin at gayon pa man ito ay nangyari at ako ay lubos na nagpapasalamat sa Diyos tungkol dito dahil ito ay talagang isang himala sa kadahilanang ang mga bato ay ang pangunahing organ upang makagawa ng mga Erythropoietin hormones kaya na ang utak ng buto ay maaaring makagawa ng dugo. Ngunit ang aking katawan ay tila gumagawa ng mga hormone ng EPO sa sarili nitong paraan. Hindi ko alam kung bakit nangyari ito kung isasaalang-alang na hindi dapat dahil ang aking mga bato ay hindi na gumagana at pinagtataka pa rin ako hanggang ngayon.

Gayunpaman, clueless pa rin ako sa nangyayari sa katawan ko kahit na nagbabago na ang mga buto ko. Naisip ko na normal na bagay lang sa case ko na magkaroon ng mga pagbabago sa itsura ko, maging pangit dahil sa pagiging dialysis patient. I never concentrated about my own facial appearance kaya naman bihira akong gumamit ng salamin. Ako ay kalbo sa lahat ng oras na naging dahilan na hindi ko na tiningnan ang aking mukha sa salamin. Until I saw myself one day from the mirror that my body really got malformed especially my face. Mabilis ang takbo nito kaya nagulat ako. Palagi akong nakahiga dahil sa sakit at panghihina hanggang sa ang sakit at malformation ay naging parabolic sa bilis at pag-lala.

Ito ay isang mahabang kuwento hanggang sa matuklasan ko ang mga therapeutic effect ng bitamina K2 MK-7. Upang mabuo ang mga epekto ng nabanggit na bitamina, epektibo nitong binabaligtad ang epekto ng pangalawang Hyperparathyroidism sa pamamagitan ng pagpapahintulot sa buto na sumipsip ng Calcium nang mas mabilis kaysa sa nahuhulog nito. Iyon ang dahilan kung bakit nag-uulat ako ng maraming pagpapagaan ng matagal na sakit sa aking mga kasukasuan at buto. Ang gamot na Cinacalcet ay tila pinapalambot ang epekto ng pangalawang hyperparathyroidism ngunit hindi nire-rehabilitate ang mga buto. Ito ang dahilan kung bakit hindi ako nakakakuha ng malaking pagpapabuti gamit ang Cinacalcet dahil pinapabagal lamang nito ang pagkasira ng aking mga buto.

Ngayon ay umuurong pa rin ang aking facial bone overgrowth dahil nararamdaman ko ito sa aking bibig. Ang mass ng buto sa ilalim ng aking dila ay tila bumaba bagamat hindi ganap. Ang aking hitsura ay hindi masyadong nakakagulat na tingnan, at least para sa akin. Kaya sa ngayon under observation pa ako. Umaasa ako na ang pag-urong ng paglaki ng buto ng mukha ko ay magpapatuloy at parang langit kung ginawa ito para magkaroon ako ng opsyon na magkabit ulit ng ngipin para makakain ulit ako ng nguya gaya ng normal para makakain ako ng mas maayos. kahit na sa likod ng aking isip ay medyo imposible. Gayunpaman, walang imposible sa Diyos kung gugustuhin niya ito. Ang pag-asa ko sa ilang magagandang pagbabago na maaaring mangyari sa aking katawan ay labis akong nasasabik at isa pang dahilan para umasa akong makita ang liwanag ng mga araw sa aking buhay.


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  ·  2 years ago  ·  

I'm glad that you are able to find a form of treatment for yourself in one way or the other. God will surely let you live long. Amen!!!

  ·  2 years ago  ·  

Yes, thanks a million to God.


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  ·  2 years ago  ·  

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