A note by Eva Moore-Jarema
My first son was born prematurely because he was weak after 30 weeks of pregnancy. When we were admitted to the hospital he was in a high risk condition.. the doctor did an ultrasound and said "Did you know that your son has a very large tumor on his brain?" said. His 20 week ultrasound was normal. That night I had sudden pain and he was alive, but there was a list of problems. His main condition is Agenesis of Corpus Callosum. "Rain Man" Kim Peek had this same situation that you remember.
I remember the doctors saying he would never walk or talk, and if we were lucky he might have six months of growth.
I felt nothing but love for my son, but I also felt incredibly guilty and felt like a failure as a mother. What did I do wrong? I have never drunk, smoked or taken drugs. Why did you make a baby with so many problems? This pregnancy and baby should have been a happy time in my life, and I felt guilty, sad, and depressed. (To be honest) I didn't feel that way for long now, because my son was busy with a lot of work and focused on making him the best version of me he could be. I was a great advocate for his health and got him into every type of program/treatment I could find. We also prayed a lot and surrounded him with love and positive vibes.
It's okay if your motherhood experience isn't the same as everyone else's. I learned to make it a habit to visit him at the hospital instead of taking him home right away. I found a community with other NICU moms, many of whom I am still friends with today.
Aidan is now sixteen and doing great. He attends Normal High School. As his neurosurgeon said, “You can have a normal brain and be completely disabled, or you can have an abnormal brain and be normal.” His life is not easy, but he is very strong and determined.
#blurt #blurtstory #geekpranee #elephent #sick #srilanka #disabled #crual